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There are millions of people worldwide with rare diseases who are in need of accurate diagnoses and access to appropriate treatments. Many people share their stories and opinions with me. This blog is meant to give them voice so that together we can continue the global crusade for orphan drugs to treat rare diseases.
More comments about Orphan Drugs: A Global Crusade
Comments regarding the launch of Orphan Drugs: A Global Crusade from: Priscilla Ciccariello (founder of the National Marfan Foundation), Patrick Donoho and Lesley Greene, Founder of CLIMB, Great Britain
Comments from 5 people about Orphan Drugs: A Global Crusade
Comments regarding the launch of Orphan Drugs: A Global Crusade from:
Doris Zallen, Ph.D., Raymond Woosley M.D., Ph.D., Michael W. Young, Ken Mehrling and Wendy White
Thank you note from Leo Adalbert
A thank you note from Leo Adalbert, Formerly Marketing and Launch Team Leader, Rilutek (riluzole) for Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's disease
